MND Association - Hull and East Yorkshire Group

Non-Profit
ALS/MND Dedicated

Coverage: Hull and East Yorkshire. Branch cheques via MNDA National: Francis Crick House, 6 Summerhouse Road, Moulton Park, Northampton NN3 6BJ (National Office), East Riding, United Kingdom

Overall Score
4.0 / 5.0
4 of 6 dimensions scored · 2 N/A
How is this score calculated?

Score by Dimension

Services Breadth
4/5
Advocacy Reach
N/A
Accessibility
5/5
Patient Support
N/A
Data Completeness
5/5
Network Connectivity
2/5
4 of 6 dimensions scored · 2 marked N/A (excluded from the average).
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Score breakdown

Services Breadth

4/5

Number of service categories this organization offers.

  • ✓2 service categories listed

Advocacy Reach

How broadly this organization advocates and informs the ALS community.

  • —Raises ALS awareness
  • —Online information source
  • —Publishes research / reports
  • —International reach
  • —Engages in policy / advocacy

Accessibility

5/5

How easy it is for patients and families to reach this organization.

  • ✓Has website
  • ✓Has phone number
  • ✓Has email
  • ✓Has street address
  • ✓Has map coordinates

Patient Support

Breadth of direct support offered to patients and families.

  • —In-person support groups
  • —Online support groups
  • —Caregiver resources in services
  • —Funds or provides home care
  • —Children's resources

Data Completeness

5/5

Percentage of profile fields with information.

  • ✓Name
  • ✓Type
  • ✓Country
  • ✓State / region
  • ✓Address
  • ✓Phone
  • ✓Email
  • ✓Website
  • ✓Mission

Network Connectivity

2/5

Connections to research consortia and ALS networks.

  • —Part of a consortia
  • —International reach
  • —Publishes research
  • —Maintains an ALS database
  • ✓Mentions a known network (NEALS, ENCALS, TRICALS, etc.)

Contact

Coverage: Hull and East Yorkshire. Branch cheques via MNDA National: Francis Crick House, 6 Summerhouse Road, Moulton Park, Northampton NN3 6BJ (National Office)

Mission

Volunteer group covering Kingston upon Hull and East Yorkshire. Provides regional patient support, awareness raising, and fundraising. Coordinates with the MND Care Centre network at Hull Royal Infirmary and regional NHS neurology services. — Regional Patient Support, Association Visitor Home Visits, Peer Support Groups, Fundraising, Awareness Raising, Financial Support Funds, Equipment Loans, Bereavement Support, Volunteer Network

Services
Non-Profit
Advocacy

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