Hospital de Santa Maria (ULS Santa Maria, formerly Centro Hospitalar Universitário Lisboa-Norte); Instituto de Medicina Molecular João Lobo Antunes (iMM Lisboa); Faculdade de Medicina da Universidade de Lisboa

Number of service categories this organization offers.

• ✓1 service category listed

PubMed publications + ClinicalTrials.gov active trials linked to this organization.

• —0 PubMed publications
• —0 active clinical trials

How easy it is for patients and families to reach this organization.

• ✓Has website
• ✓Has phone number
• ✓Has email
• ✓Has street address
• ✓Has map coordinates

Breadth of direct support offered to patients and families.

• —In-person support groups
• —Online support groups
• —Caregiver resources in services
• —Funds or provides home care
• —Children's resources

Percentage of profile fields with information.

• ✓Name
• ✓Type
• ✓Country
• ✓State / region
• ✓Address
• ✓Phone
• ✓Email
• ✓Website
• ✓Mission

Connections to research consortia and ALS networks.

• —Part of a consortia
• —International reach
• —Publishes research
• —Maintains an ALS database
• —Mentions a known network (NEALS, ENCALS, TRICALS, etc.)

No community reviews yet — this dimension is excluded from the overall score.

• —No reviews yet

Contact

Mission

Lead: Prof. Mamede de Carvalho. Portugal's national ALS flagship + European research powerhouse — 27-year cohort, BRAINTEASER dataset source. Patient cohort: 27+ years of continuous ALS cohort data (initiated 1995, still active); 580+ ALS patients analyzed in the 2021 Falcão de Campos diagnostic-delay paper BRAINTEASER dataset source — Lisbon ALS clinical dataset formally merged with Italian PARALS (Turin) for EU AI/progression modeling project; iDPP@CLEF 2022, 2023, 2024 international AI challenges Research specialties: ALS clinical neurophysiology (EMG, motor unit firing, nerve conduction studies, motor unit number estimation)