Abrela in Brazil
Non-Profit395 397 R Botucatu, Sao Paulo, São Paulo, 04023-061, Brazi, São Paulo, Brazil
Score by Dimension
Score breakdown
Services Breadth
3/5Number of service categories this organization offers.
- ✓1 service category listed
Advocacy Reach
How broadly this organization advocates and informs the ALS community.
- —Raises ALS awareness
- —Online information source
- —Publishes research / reports
- —International reach
- —Engages in policy / advocacy
Accessibility
5/5How easy it is for patients and families to reach this organization.
- ✓Has website
- ✓Has phone number
- ✓Has email
- ✓Has street address
- ✓Has map coordinates
Patient Support
Breadth of direct support offered to patients and families.
- —In-person support groups
- —Online support groups
- —Caregiver resources in services
- —Funds or provides home care
- —Children's resources
Data Completeness
5/5Percentage of profile fields with information.
- ✓Name
- ✓Type
- ✓Country
- ✓State / region
- ✓Address
- ✓Phone
- ✓Website
- ✓Mission
Network Connectivity
2/5Connections to research consortia and ALS networks.
- —Part of a consortia
- —International reach
- —Publishes research
- —Maintains an ALS database
- ✓Mentions a known network (NEALS, ENCALS, TRICALS, etc.)
Contact
Mission
Brazil's national ALS patient advocacy infrastructure — multiple organizations. ABrELA founded 1998 by Dr. Acary Souza Bulle Oliveira (Entry 82) — implementing US multidisciplinary ALS model in Brazil Participated in Brazil's first epidemiological ALS study International Alliance of ALS/MND Associations member (Brazil seat) National reference for technical-scientific ALS information Publishes patient education materials (ABrELA livreto)
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