ASEM FEDERATION

Research
Multi-Condition · Serves ALS/MND

Carrer del Ter, 20, local 10, Sant Martí, 08026 Barcelona, Spain, Cataluña, Spain

Research
Overall Score
4.3 / 5.0
3 of 6 dimensions scored · 3 N/A
How is this score calculated?

Score by Dimension

Services Breadth
3/5
Advocacy Reach
N/A
Accessibility
5/5
Patient Support
N/A
Data Completeness
5/5
Network Connectivity
N/A
3 of 6 dimensions scored · 3 marked N/A (excluded from the average).
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Score breakdown

Services Breadth

3/5

Number of service categories this organization offers.

  • ✓1 service category listed

Advocacy Reach

How broadly this organization advocates and informs the ALS community.

  • —Raises ALS awareness
  • —Online information source
  • —Publishes research / reports
  • —International reach
  • —Engages in policy / advocacy

Accessibility

5/5

How easy it is for patients and families to reach this organization.

  • ✓Has website
  • ✓Has phone number
  • ✓Has email
  • ✓Has street address
  • ✓Has map coordinates

Patient Support

Breadth of direct support offered to patients and families.

  • —In-person support groups
  • —Online support groups
  • —Caregiver resources in services
  • —Funds or provides home care
  • —Children's resources

Data Completeness

5/5

Percentage of profile fields with information.

  • ✓Name
  • ✓Type
  • ✓Country
  • ✓State / region
  • ✓Address
  • ✓Phone
  • ✓Email
  • ✓Website
  • ✓Mission

Network Connectivity

Connections to research consortia and ALS networks.

  • —Part of a consortia
  • —International reach
  • —Publishes research
  • —Maintains an ALS database
  • —Mentions a known network (NEALS, ENCALS, TRICALS, etc.)

Contact

Carrer del Ter, 20, local 10, Sant Martí, 08026 Barcelona, Spain

Mission

At the ASEM Federation we work to promote and represent the associative movement in the field of neuromuscular diseases in Spain, and promote knowledge and visibility of these pathologies.

Services
Research

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