University Hospital Mannheim (UMM) / University of Heidelberg - Neurodegeneration Section
ClinicTheodor-Kutzer-Ufer 1-3, 68167 Mannheim, Germany, Baden-Württemberg, Germany
Score by Dimension
Score breakdown
Services Breadth
3/5Number of service categories this organization offers.
- ✓1 service category listed
Research Activity
PubMed publications + ClinicalTrials.gov active trials linked to this organization.
- —0 PubMed publications
- —0 active clinical trials
Accessibility
5/5How easy it is for patients and families to reach this organization.
- ✓Has website
- ✓Has phone number
- ✓Has email
- ✓Has street address
- ✓Has map coordinates
Patient Support
Breadth of direct support offered to patients and families.
- —In-person support groups
- —Online support groups
- —Caregiver resources in services
- —Funds or provides home care
- —Children's resources
Data Completeness
5/5Percentage of profile fields with information.
- ✓Name
- ✓Type
- ✓Country
- ✓State / region
- ✓Address
- ✓Phone
- ✓Website
- ✓Mission
Network Connectivity
2/5Connections to research consortia and ALS networks.
- —Part of a consortia
- —International reach
- —Publishes research
- —Maintains an ALS database
- ✓Mentions a known network (NEALS, ENCALS, TRICALS, etc.)
Community Rating
0/5No community reviews yet — this dimension is excluded from the overall score.
- —No reviews yet
Contact
Mission
Internationally recognised Neurodegeneration Section at University Hospital Mannheim / University of Heidelberg with particular focus on motor neuron diseases (especially familial and genetic forms). Acting Head of Division for Neurodegenerative Diseases: PD Dr. med. Julian Conrad. Prof. Dr. med. Jochen Weishaupt as senior clinician-researcher (also Ulm affiliate). Services: initial diagnosis and second opinion, stage-dependent aid evaluation and provision, genetic counselling and human genetic diagnostics (neurogenetics consultation hour), gene-specific therapy (Tofersen), nocturnal non-invasive blood gas analysis, NIV initiation and optimization, PEG placement via gastroenterology, socio-medical counselling. Participates in biomarker, care, and therapy studies. — ALS Clinic, Multidisciplinary Care, Specialized Neurology, Neuromuscular Disorders, Clinical Trials, Research, Genetic Testing, Biomarker Analysis, MND-NET Member, Neurogenetics Consultation, Tofersen Therapy, Familial/Genetic ALS Focus, Heidelberg Affiliation
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