National Society of Genetic Counselors

Research
Multi-Condition · Serves ALS/MND

330 North Wabash Avenue, Suite 2000, Chicago, IL 60611, Illinois, United States

Research
Overall Score
4.3 / 5.0
3 of 6 dimensions scored · 3 N/A
How is this score calculated?

Score by Dimension

Services Breadth
3/5
Advocacy Reach
N/A
Accessibility
5/5
Patient Support
N/A
Data Completeness
5/5
Network Connectivity
N/A
3 of 6 dimensions scored · 3 marked N/A (excluded from the average).
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Score breakdown

Services Breadth

3/5

Number of service categories this organization offers.

  • ✓1 service category listed

Advocacy Reach

How broadly this organization advocates and informs the ALS community.

  • —Raises ALS awareness
  • —Online information source
  • —Publishes research / reports
  • —International reach
  • —Engages in policy / advocacy

Accessibility

5/5

How easy it is for patients and families to reach this organization.

  • ✓Has website
  • ✓Has phone number
  • ✓Has email
  • ✓Has street address
  • ✓Has map coordinates

Patient Support

Breadth of direct support offered to patients and families.

  • —In-person support groups
  • —Online support groups
  • —Caregiver resources in services
  • —Funds or provides home care
  • —Children's resources

Data Completeness

5/5

Percentage of profile fields with information.

  • ✓Name
  • ✓Type
  • ✓Country
  • ✓State / region
  • ✓Address
  • ✓Phone
  • ✓Email
  • ✓Website
  • ✓Mission

Network Connectivity

Connections to research consortia and ALS networks.

  • —Part of a consortia
  • —International reach
  • —Publishes research
  • —Maintains an ALS database
  • —Mentions a known network (NEALS, ENCALS, TRICALS, etc.)

Contact

330 North Wabash Avenue, Suite 2000, Chicago, IL 60611

Mission

The National Society of Genetic Counselors advances the various roles of genetic counselors in health care by fostering education, research, and public policy to ensure the availability of quality genetic services

Services
Research

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